taymunholland
@taymunholland
taymunholland
@taymunholland
My 85 year old Poopa (grandpa) took me out for an adventure 💕🌿 I haven’t been able to drive or do much with how sick I’ve been. This was much needed nature therapy and bonding. I so love and treasure my time with him 🫶🏼
ps snake peeps, is this cutie a water snake or a water moccasin (cottonmouth). Settle a bet… 🐍
psps my surgery got bumped up from July 25th to next Thursday, so grateful!
xo. #grandpalove #rrawimpact #oklahoma #littlemoments
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taymunholland
@taymunholland
taymunholland
@taymunholland
taymunholland
@taymunholland
taymunholland
@taymunholland
taymunholland
@taymunholland
taymunholland
@taymunholland
taymunholland
@taymunholland
Never give up ❤️🩹
Yes, that’s me sitting on a toilet aka that + my bed + the bathroom floor + my infrared heating is where I’ve been spending most of my time of late.
I’m not catching a lot of breaks with my health. Last I checked in I shared finishing off 17 days of antibiotics + steroids + iv therapies.
As of right now I’m scheduled for my 23rd procedure under anesthesia — this one being for my annual bladder hydrodistention/cystoscopy to treat my Interstitial Cystitis -Painful Bladder Syndrome - w/Hunner’s lesions. I have been experiencing a lot of bladder discomfort, pain, pressure, urgency, burning, & retention (to the point I’ll pass out). The procedure performed helps immensely with managing these symptoms for me. IC is a chronic condition where the walls of the bladder become irritated & inflamed compared with those of a normal bladder + signals get mixed up. Hunner lesions are characterized by a reddened area of the bladder lining with radiating vessels & a central scar, often covered by a fibrin deposit. The first time I was scoped my bladder was described as looking like a “bloody piece of meatloaf”; after being misdiagnosed for UTIs throughout my childhood/ teen yrs.
Along with this my chronic pelvic pain w/hypertonic pelvic floor, pelvic floor dysfunction, & pudendal neuralgia has been flared. Through this I’ve had moments where I have not been able to keep standing due to the pressure in my pelvic floor that radiates down my legs. Always frightening when this occurs.
My Mast Cell Activation Syndrome / Dysautonomia / POTS / Fibro / IBS / IBD / EDS have all been flaring with rashes/boils on my skin, brain fog, fatigue, stomach issues, bone/muscle/nerve pain. Along with the passing of more intestinal lining/mucus buildup (100% human DNA - not parasites) which typically occurs when I’m flaring & I believe is an inflammatory response.
Like many I’m also doing my best to keep my anxiety under check with all the bullshit the Trump administration is handing out.
It’s been challenging but I’m very thankful for my fam, friends, medical team, community, & all the precious moments that keep me hopeful & soul happy.
Hugs 🫶🏼 #keepgoing
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taymunholland
@taymunholland
taymunholland
@taymunholland