Friends who explore together, stick together 💕 Love you bunches @hiking.utah & Harley 🐶 Can’t wait for our next adventure!! “The wilderness must be explored! Caw-caw, RARR!” 😆🌿🤟🏼
After 10 months of severe chronic pelvic pain that I could have lost my life to, I ended up seeing one more specialist before being referred to the Mayo Clinic. With this new specialist & her examination + the examination of my pelvic floor physical therapist who I’ve been working with for 9 years & is one my closest friends, we discovered that along with the pudendal neuroalgia that I was also suffering from severe Hypertonic Pelvic Floor. Hypertonic pelvic floor is a condition where the muscles in your lower pelvis are in a spasm or state of constant contraction. This can be temporary or constant. When your pelvic floor muscles are in this state, they can’t relax & coordinate the control of certain bodily functions. This causes pain (either constant or with certain activities), problems with urination & bowel movements, as well as sexual dysfunction & painful intercourse. The severity of my contractions were up there with labor pains with a woman giving natural childbirth. Everyone who witnessed me at my worse said I looked like a woman giving birth. Indeed I was given vaginal nerve blocks that are given to women in labor.
The combination of pudendal neuralgia & hypertonic pelvic floor along with interstitial cystitis & irritable bowel syndrome, along with the scar tissue from endometriosis made my life in a truly living hell. I couldn’t urinate or have a bowel movement without screaming my lungs out. Needing my mom to hold me as I sat on the toilet & catch me when I would pass out from pain. I ended up passing out multiple times a day where I needed constant supervision since I would stop breathing & be unconscious. I ended up passing out due to the severity of pain up to around 500 times from April to October. I thankfully only hit my head twice during all those times, I had gained an awareness of fainting through having the condition POTS (Postural tachycardia syndrome).
After months of trying different medications, herbs & diet changes, I was placed on a new muscle relaxer with the new specialist which was a true game changer.
"You wind among rocks of every conceivable and inconceivable shape and size... all bright red, all motionless and silent, with a strange look of having been just stopped and held back in the very climax of some supernatural catastrophe." — Helen Hunt Jackson #Wanderlust#travel
My next trip is in 10 days 😄 can’t wait!!! Going to take in some scenic views of Arizona & New Mexico on my way to my home state of Oklahoma. So excited see the changing of the leaves 🍁🍂 #travelready#petrifiedforest#arizona
My body has been in severe pain. My bones have been screaming as if knives have been chiseling them away. From my soul I have cried & screamed Yesterday I received a call from my medical team in Oklahoma asking if I can make a trip out for me to be seen. Since my medical team in OK has been with me & helping me on my health journey for the last 8 years I’ve booked my flight for next weekend to head back to be seen. More exams & tests to come but I’m feeling less anxious since I will be with my main doctors, their nurses who I have become dear friends, & I’ll have the support of my family right by side instead of states away. I’m thankful for the medical help I have received in Utah and wish to continue to work with the doctors here but since my symptoms are becoming more & more severe and my weight continues to decrease dramatically, I feel more at ease knowing I will be under the care of my doctors who know my case like the back of their hands. While going through this new battle with my health I have found myself to be less patient & my frustrations to be heightened. I know pain is relative to each individual’s life experiences but at the same time I find myself getting so angry at others who take their lives for granted, who settle, who act as though they don’t have control over things they actually do have control of and just stand still or run in circles. I want to shake others & scream in their faces to “wake the fuck up” I know it’s not easy to make huge life changes... but for me I see the imagery of the lotus blooming from the mud or the Phoenix rising from the ashes. A moment of discomfort, a temporary period of pain in exchange for a better and greater life... it just seems like an easy answer to me. I witness friends in terrible relationships, jobs, & parts of their lives they have the power to change if they just take the action. It pains me to see them hurt & honestly it pisses me off that they don’t do anything about it. They just sit there in their misery. They stick in it. They settle which breaks my heart. Fighting for a life you love & never settling is vital in my beliefs. Life is so short. Don’t waste it. @taylor_munholland ...read more